Switch Places
Added 2018-10-19 18:35:14 +0000 UTCLiving with a paralysis is hard. To drag your legs out of bed in the morning, trying not to lose balance during every movement in the wheelchair and during doing transfers, it's a daily struggle.
There are so many things to think about and then there are people online commenting that they wish they could switch places. To me it's something I can't understand. Maybe some people don't understand what it is really like to live with something like this.
It's not just not being able to walk or feel anything. It's the way people treat you as less, the many problems with accessibility in so many places, it's the energy level that never works and the contant risks you have to take to do anything. So to some pretenders it might be a game and to some admirers it will be arousing to see a person struggle but the rest, believe me.. you don't wish this to happen to your worse enemy.
And what about respect. Respect for a persons feelings and thoughts. I have respect for devotees and their desires. And I am not just a body, even though some just will see my like that. Luckily there are many who are truly nice people who do respect the disability and the person. I expect a devotee has respect for me, as a person and when I'm sharing images of my disabled existence. Please don't share my photo's and videos without asking. I am doing this for a reason and when people don't respect that, we have a problem.
