Anemia experience?
Added 2023-09-29 04:55:17 +0000 UTCHi friends,
Im reaching out to see if anyone is a nurse or might deal with anemia and can tell me if you've ever had sharp, awful pain in ur bones? I can't move but a little because it's so bad. it's not muscular or nerve pain. Im having a very, very hard time breathing and pushing up my chest along with pain in my heart. Can't get enough air. this is one of the worsts I've ever felt.
My white blood cells are really low and idk if I'm dealing with some infection vs the direct anemia.
I would beyond appreciate any insight as to if this sounds familiar to maybe a similar experience of yours. Thank you so much for taking the time to read this. xoxo
Comments
I hope the iron infusions make a big difference in your life and Maddie’s!❤️
Maggie Q
2023-09-30 15:43:00 +0000 UTCI think I speak for everyone when I say that you can always reach out to us🩵
Birdie
2023-09-30 08:55:31 +0000 UTCHey Maddie it does sound anemia related. I will be starting on iron infusions too soon. I also have POTS and lupus, and a blood disorder. It’s all so scary! Currently on my cycle and I’m feeling all the anemia symptoms. The leg aching bone pain is also very real.
Grace Smith
2023-09-30 03:28:14 +0000 UTCI want to thank everyone for holding a space for me and time taken to share info. It's so scary, draining, and painful when breathing is so challenging. I already struggle with that due to POTS, so it's extra challenging. Living alone adds on a scare layer...I started antibiotics to help with any infections going on and will be in contact with dr surrounding iron infusions. I am trying to not be out of bed to lower fall risk. My fainting has been increased this week and I'm trying my best to manage. It all gets to be so overwhelming. It's hard to be sick and alone. Im gonna start IV fluids tonight along with Benadryl to hopefully continue pull swelling down from MCAS unknown allergic reaction trigger. Thank you over and over again! When dealing with medical trauma I often shut down and can't receive emergency care because that triggers so much for me. I did advocate for myself and ended up going last night (not that the ER doc would listen/look at my recent critical labs and severe anemia) Thank you for the sweet reminders and advice to be seen. It was the budge I needed to get some help. I love everyone and appreciate you beyond words. Im so sorry many of you sweet friends understand these struggles
Asmr Mads
2023-09-30 02:40:33 +0000 UTC
