How do you get a diagnosis if your family don't believe you? & Dyspraxia Advice π
Added 2024-08-28 21:45:01 +0000 UTCAnother exclusive Autistic Advice/Q&A video!
Are you a PDAer or more rigid with routines? What do you think of my little theory? π
Comments
Hey checking back in here since itβs been a while. I was the one who was asking for advice abt getting a diagnosis. Thank you all for all the suggestions, it was a lot of help. After a year of struggle trying to navigate the system at school I finally have an appointment for possibly an adhd diagnosis on Monday and while I wait I get accommodations through the office of accessibility. I actually talked to my mom at some point about my struggles with math and she said βit probably wouldnβt be hardβ for me to get diagnosed with something lol, so maybe it will be easier to convince them than I thought. Thank you all so much again. I am in a much better mental place now than I was then. Weβll see how the appointment goes! :)
Mika
2025-09-20 02:07:54 +0000 UTCI could never blow a bubble with gum or whistle as a kid; it took me much longer than my peers to learn how to do those. My siblings made fun of me but I'm pretty sure that was the reason why I couldn't!
Liz W
2025-01-05 22:21:33 +0000 UTCThe grater thing is SO. REAL. I have grated my fingers so many times. T_T
Stephanie Hicks
2024-12-17 23:49:39 +0000 UTCI think my son might be dyspraxic. I'm definitely interested in more lived experience info and any good resources/books/guides that might be recommended! Thanks always :)
LaraSidra
2024-11-30 20:14:02 +0000 UTCI can't keep a routine because I become too distressed if something gets in the way of me keeping that routine. I do still have like mini routines for specific tasks, but keeping a daily or weekly routine is just not an option.
Madeline Shaffer
2024-10-26 21:04:21 +0000 UTCMy assessment was 4000 dollars. It's tough
Angel Best
2024-10-17 21:05:40 +0000 UTCI think I said something about this towards the end of the first autistic advice video here! I don't have any advice, sadly π https://www.patreon.com/posts/why-are-we-so-92046839?utm_medium=clipboard_copy&utm_source=copyLink&utm_campaign=postshare_creator&utm_content=join_link
I'm Autistic, Now What
2024-09-17 18:58:44 +0000 UTCDoes anyone else with dyspraxia struggle to apply makeup? I pretty much can't do it at all especially eye makeup. I don't think it helps that I also have vision problems lol. Lemme know if anyone has advice β₯
Brian Schroth
2024-09-05 18:55:50 +0000 UTCThanks for talking about pda/ADHD/?? and planning, cause I have struggled with imposter syndrome around this issue (even though it is transparent that it is not a NT traitπ€£). Everyone is always recommending that you create lists and plan every detail as a way to avoid stress, but it always just makes me more stressed. I only create lists as a loose reminder of things that should probably be done eventually. Any more detailed, and I might get nothing done. I have recently discovered that if it is something that feels really out of my control, then creating a list can help give me a sense of control, but I only tried it once; who knows if it will work again
Nath
2024-09-02 21:26:03 +0000 UTCI received a diagnosis without parental support in the US, although as an adult. I know some colleges offer basic student medical insurance plans, and I know that payment plans are also an option. It could still be pretty expensive, though--quoted at around $900 out of pocket. The outher concern that may come up is healthcare providers expect you to have parents or older relatives fill out questionnaires about your childhood, which in my case caused my first attempt at diagnosis to fail. The doctor said she couldn't diagnose me without my parent agreeing I had social difficulties, and my mom wouldn't admit that to someone outside the family. Luckily, the second doctor accepted my own testimony and statements from my older brother and friends. I'd check early on if it's okay that your parents aren't involved.
Abby D
2024-09-02 19:47:41 +0000 UTCIf you worry about cutting, look up metal mesh gloves. They come in 2 styles; "chainmail" or kevlar cloth. The only way to cut yourself wearing one of these is to stab hard, the kevlar would rip a little and you'd get poked, or the chain would stop the blade but you'd get the tip. Otherwise, you can saw at your palm with the knife and nothing! Good if you're nervous and great at parties! One tip I could give to the teen going to college: If your parents are paying for any part of it, it may be helpful to leverage your success at school on your diagnosis. They don't want to waste their money, and you may not make it without the accommodations. I do like the suggestion of seeking in-college counselors for help as well, maybe someone there would know of a way.
Aaron S
2024-08-31 22:38:00 +0000 UTCIΒ΄d like more videos about dyspraxia for sure! And I have a specific question: How did You get Your "official" dyspraxia diagnose? With Your autism one? Did You have to mention it before? I got diagnosed as a child with so called MCD (minimal cerebral dysfunction, that was the name of ADHD before in the 80s and this, had to do some "special gymnastics" to get less clumsy. I was very good at school, just horrible with maths (I also need an official dyscalculia-test! I was very good in higher maths again without numbers later, I think it was called formal logic?, set theory, probabilities, etc. and then bad again when it included numbers, same with physics, good, bad, good again...) and horrible at sports. The only thing I was good at was deep diving and diving in general at swimming and I was extremly flexible. But no condition, no strengths and clumsy at its worst. Had a lot of accidents, still have with broken bones, cuts, torn ligaments etc. And always bruises from running against and into things... Actually look like beaten up and fallen from a horse into rose bushes with a lot of bruises and bloody scratches/wounds from falling backwards over a small package when taking it in from delivery and had been very stressed. I donΒ΄t know how, but I managed to stuck between door and a small cupboard and destroyed the light switch trying to hold on to the wall loosing balance... Also fell on my back head and back. The day before I was vacuuming and created a big wound with a big bloodfilled bump around a hole because I just wanted to put a rattan chair to the side and managed to drill a strong rattan perch into my arm. And things like that happen quite often! But my handwriting was excellent and I was always extremly tidy. Just a daydreamer and very slow, started later and needed longer, needed more space to write as I had a big writing. And was very perfectionist. Also my mother was a teacher and very strict, I HAD TO BE always very good at intellectual things and was drilled in the things I struggled with, so I donΒ΄t know if it would have been different without. As my earliest possible appointment for an autism-diagnose I have to pay private is october 25 after waiting more then two years now for one over insurance IΒ΄d also do one in other european countries if earlier possible, so also informations of other countries will be helpful. For cooking I absolutly recommend high quality knives that are sharp enough. You will see You cut Yourself less with them, although You might have expected the other way round (not that I did not manage to let it fall down cleaning it so it fell directly on my shin with itΒ΄s very sharp top so I have another scar for some years now, but....in general...I recommend it). And a nice kitchen machine that grades Your carrots for example but also cuts thin sclices of cucumbers etc.
Katzenbekloppt
2024-08-31 15:18:03 +0000 UTCSame here but I might be more of a grand father type.
Chuck Hargis
2024-08-30 21:18:44 +0000 UTCIn the US we have to get a referral from our GP, I believe it still works that way even if I'm already seeing a psychiatrist for Bipolar. I don't blow dry my hair but my hair dries pretty quickly after I just dab it a little after I wash it. I need to learn more about dyspraxia. I was in gymnastics in high school and after working hard and practicing for two years I got a 4.7 out of a possible 10 on my compulsory routine. I might have dyspraxia.
Chuck Hargis
2024-08-30 20:59:25 +0000 UTCI don't know if I have dyspraxia, but I 100% have terrible handwriting. I learned to write in Poland and they teach cursive there, then I moved to the UK and carried on writing in cursive for quite a few years. Then eventually, in my first year of high school, my English teacher told the whole class that if you can't write legible cursive, you shouldn't attempt it. It felt like a direct jab at me because I don't think anyone else in the class attempted cursive xD
Marcin Wolf
2024-08-30 09:17:32 +0000 UTCfor the bottle/can opening stuff : there are some bottlee/can opener stuff you can buy which helped me a lot. then my grandfather changed the top part of the stairs for me by hanging cabinet hangers to the top of the stairs so the few stairs without a handrail are easier for me. for the kitchen i have a machine that cuts most veggies for me that grandma (it's old thing) only used for cumcumbers but i found out you can cut other veggies with it. i know i have more ways to help me than that for my kitchen i just can't remember them right this moment. i'm sorry.
Rainbow Butterfly
2024-08-30 08:14:31 +0000 UTCyay!!
Dog
2024-08-29 22:52:54 +0000 UTCI relate to you more than ANYONE else ! And yet I am old enough to be your grandmother
Tessa Coker
2024-08-29 22:09:18 +0000 UTCOne of the reasons the parents of the individual who is trying to get a diagnosis might be resistant is that they themselves are autistic but do not know. They may think that "everyone does that" because they have the same autistic behaviors and think those are normal problems everyone has.
Roxann Ireland
2024-08-29 18:51:31 +0000 UTCMy pervasive drive for autonomy says #FYIWDWYTM to anyone's schedule, including those I create for myself. I still get the things done, but it's more likely to happen when I'm under a tight deadline or when I feel like it.
Paranoid Goblinoid
2024-08-29 15:54:48 +0000 UTCI second this. Also, a lot of unis have disability services that might be able to guide you. But they vary from uni to uni. The disability service at the uni where I did undergrad was really helpful and helped get me accommodations for exams. Then the one where I did my masters was useless. I applied for accommodations and they said they'd put me on a support plan and never followed up. I asked them multiple times and had the student support officer check with them but even after that they did jack shit. I actually finished my masters with no support and still no response from them. I actually got diagnosed years before but when I went back to uni, they couldn't find the paperwork for my diagnosis. My GP had the message diagnosing me but the guy that diagnosed me screwed something up and the official paperwork was nowhere to be found. Because I needed accommodations for my undergrad, I talked to the disability service and my GP and somehow they were able to fast track me through to a quick diagnosis. I had to wait almost a year the first time I got diagnosed but this time, it all happened in about 3 weeks. It's annoying that your parents aren't supportive. Mine still have outdated thoughts about autism but I'm glad they were able to support me getting diagnosed
Joe
2024-08-29 14:10:57 +0000 UTCOn the topic of getting a diagnosis and or accommodations while enrolled in higher education. There should be at the very least be mental health (e.g a councellor), learners (e.g. study coaches) and peer (e.g. student unions) suport at your institution. I know this for the UK and Germany but my exposure to people from around the world makes me suspect this to be widespread. They are not likley to be able to organise a diagnostic appointment but they should be able to help you get accommodations.
Ruben
2024-08-29 12:32:38 +0000 UTCExactly! π
I'm Autistic, Now What
2024-08-29 09:32:13 +0000 UTCPlanning is oh, so easy - and can be kinda fun. But sticking to it... I can't even stick to a recipe!
Hugin
2024-08-29 08:33:29 +0000 UTCIβm usually good with opening stuff. But when Iβm not, I use a Lego separator lol
shapeofsoup
2024-08-29 05:40:09 +0000 UTCDyspraxia club!
shapeofsoup
2024-08-29 05:30:06 +0000 UTCFor me, luckily the place where I got my diagnoses were able to set up a payment plan to where it is somewhat affordable for autism and adhd. Basically, a full psych exam. I recommend looking for resources, find a friend and/or other family member to help you, try to earn money in a way you are comfortable like whether that is a job or art commissions, start accommodating for yourself because it will take time to get the diagnoses and get the report for your provider and teachers to use to help you.
Dog
2024-08-29 05:10:31 +0000 UTCHere is a nice talk about the condition in a light hearted way, it's a podcast i discovered the other day... https://shows.acast.com/neurodivergent-moments/episodes/s02e03-dyspraxia-with-john-hastings
fo4URm
2024-08-29 01:26:02 +0000 UTCHere is a nice talk about the condition in a light hearted way, it's a podcast i discovered the other day... https://shows.acast.com/neurodivergent-moments/episodes/s02e03-dyspraxia-with-john-hastings
fo4URm
2024-08-29 01:25:38 +0000 UTCSounds like dating someone with Dyspraxia would be pretty rewarding. You'd have to be a patient person, which sounds easy to me. But you'd also feel really a lot more useful to your partner, for doing everyday things. I too really like weightlifting, i sadly don't get time for it currently & i try to fit in a little cardo once a week. Which used to be my least favourite thing. But now i have a nice exercise bike & big screen. I use the Fulgaz app, that lets me do rides from all around the world in 4k 60fps
fo4URm
2024-08-29 01:23:12 +0000 UTCThank you so much for talking about dyspraxia! I also use a knife to open a can of soda, and I use a spoon handle to grab the little plastic ring in a milk carton. And I'm ok with that; I feel clever for having figured out how to use simple household items to help me get the job done.
Catherine Thiemann
2024-08-29 00:35:42 +0000 UTCI want to know what's planned. I want to know when things start and when they end. But I don't usually make plans for myself in the sense of making sure I get thing done. So perhaps ironically I don't get much done when left to my own devices, but if I make or am given a schedule I can probably stick to it (but I might overbook myself sometimes).
MagnaCorpus
2024-08-28 23:01:18 +0000 UTCI'm pretty sure I have dyspraxia but I've just started to recover from paying off my autism assessment so I don't think I'll be able to get a diagnosis any time soon... But more videos on dyspraxia would be amazing π
Evie
2024-08-28 22:47:38 +0000 UTCI go from periods of hypercontrolling planning to periods of complete avoidance.
Arualblues Zero
2024-08-28 22:31:28 +0000 UTCI don't have adhd, and I don't have PDA afaik, but I do get stressed if I feel like I'm not in control of my life. Routines and schedules make me feel like I'm not, even if I have made them myself, so I can't do them. If I have to do the same thing every day at a set time it feels like I don't have any agency. That's stressful to me, I prefer to make decisions about what I'm going to do based on how I'm feeling at the time.
Lauren Joanna
2024-08-28 22:30:56 +0000 UTCI feel like i definitely might have dyspraxia but I am good at art (although awful at keeping my hands steady) so idk lol
Issey Sherman
2024-08-28 22:13:26 +0000 UTCPlanning every little thing so I don't slip up β οΈ
Planet Autistica
2024-08-28 21:54:23 +0000 UTCOh joy, my life exactlyππ
Joachim Refsland
2024-08-28 21:49:19 +0000 UTCOoo yay new video!
Planet Autistica
2024-08-28 21:47:46 +0000 UTC
