Right before my physical therapy appointment… see the attachmentS for more videos.
I'm new to all this and would love to know what subscribers from both tears would like to see more of.!
2022-11-12 00:28:20 +0000 UTC
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Just a heads up for you all, people don't usually talk well let alone sing on a ventilator. I've always loved singing, it's probably the most therapeutic activity I could do able-bodied or disabled...
2022-11-11 04:55:34 +0000 UTC
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Living with a bush is difficult when you rely on other people to clean and care for the whole area. We joke that one of these days we'll let it grow really long and then shave a landing strip or so...
2022-11-11 01:55:13 +0000 UTC
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I know it's disgusting but it's the only way to get the mucus out of the tracheostomy. It doesn't help that I've always had a lot of allergies and mucus ever since I was a kid. I guess they also sa...
2022-11-10 23:00:41 +0000 UTC
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Don't ask…
Just kidding, ask away:)
I was a yogi before my injury and my joints were/are hyper mobile. It's nice that I'm so flexible because it makes range of motion easy for my caregiv...
2022-11-10 21:04:00 +0000 UTC
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I can't move on my own from my neck down.
I can't keep warm. Unless I'm in my room with the heater on full blast.
Right now I still live in Colorado. It gets so freezing and I spend eve...
2022-11-10 04:51:27 +0000 UTC
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Although the diaphragm pacer helps me to be able to breathe without the ventilator, it is technically an open wound and these tiny electrical wires are going into my body. Today, while changing and...
2022-11-10 04:39:35 +0000 UTC
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This part of acupuncture is focused on a spinal cord protocol which utilizes red light therapy and my own imagination to visualize spinal cord healing and movement.
I always imagine that I am...
2022-11-08 22:45:14 +0000 UTC
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Scroll down to watch a more in-depth video explaining the benefits of cupping specifically as it applies to people with paralysis.
2022-11-08 22:17:10 +0000 UTC
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In this video, my excellent acupuncturist Yvonne explain why and how cupping works.
Getting in the massage chair is becoming much easier every time, although at the beginning I struggled with...
2022-11-08 21:58:12 +0000 UTC
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This shower chair makes it possible for me to be cleaned properly every day, and in my opinion every quadriplegic should have access to this kind of accessible equipment. Many of us may not be able...
2022-11-08 21:34:32 +0000 UTC
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After dinner every night, I go back on the ventilator before my caregiver leaves for the evening. I don't get normal oxygen saturation so even though I can be on the diaphragm pacer during the day,...
2022-11-08 06:49:25 +0000 UTC
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Explored a little today… I was always finding new cool places either hikes or in the city before my injury. Driving and getting away from the house helps me to feel more independent even though I...
2022-11-08 06:42:39 +0000 UTC
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Scroll down for more of my footage… not a whole lot because I got super anxious and we ended up just driving around.
2022-11-08 05:38:26 +0000 UTC
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… and somewhat succeeding? I'm not gonna lie some days it is very difficult being disabled with such a high spinal cord injury. Although my injury did not affect my mental state, literally, it di...
2022-11-08 04:34:35 +0000 UTC
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I me trying very hard not to have a panic attack. I guess I succeeded! Anxiety is no joke and as someone who does not take prescribed medication sometimes everything going on in my mind and heart a...
2022-11-08 04:27:44 +0000 UTC
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I had planned on having a day full of doing things in Boulder, but when I got there I had so much social anxiety I could barely Drive my chair out of the van. Hey it's moments like these that we do...
2022-11-08 04:25:47 +0000 UTC
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But you're all it takes for me to break a promise
Silly me, to fall in love with you
2022-11-07 04:47:14 +0000 UTC
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But in my dreams I seem to be more honest
And I must admit, you've been in quite a few
2022-11-07 04:42:33 +0000 UTC
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Some guy who calls himself JUAN has been reposting my pictures on a site called deviant art. His username on there is:notrealjuanro
I reported him but if any of you follow other people on dev...
2022-11-06 23:16:48 +0000 UTC
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I'm still very sensitive in this area, so any kind of stimulation even during washing can cause me to spasm.
Before we were able to remodel my bathroom with the help of an association called ...
2022-11-06 20:46:58 +0000 UTC
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I'm going to be sharing more about how we change my catheter and tracheostomy, and those videos will be a little more graphic…
I'm wondering, scandalous folks, if you have any advice for my se...
2022-11-06 04:05:32 +0000 UTC
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TTHEY say I'm symptomatic
Might just be telepathic
I'm humming a song to the moss
And Redwood trees.
I hear a voice and it's not mine
There's a bird i...
2022-11-06 03:51:05 +0000 UTC
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Pillows… Lots and lots of pillows!
Because I cannot voluntarily move below my neck, I rely on wedges, one supporting my lower half and the other in between my shoulder and hips. Two pillows go...
2022-11-06 03:17:55 +0000 UTC
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Sometimes I feel so useless and unproductive in this body. Making content for all of you gives me a feeling of purposefulness. You remind me why I share myself instead of hiding.
2022-11-06 03:07:44 +0000 UTC
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What am I thinking about?
2022-11-05 04:10:40 +0000 UTC
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Don't think that I can explain it
What can I say, it's complicated
2022-11-05 04:05:19 +0000 UTC
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I want you forever even if we're not together
Scars on my body so I can take you wherever
Am I out of my head,
Am I out of my mind?
If you only knew, the bad things I like
<...
2022-11-05 03:59:32 +0000 UTC
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I actually feel very healed today.
What a strange, good feeling!z
I believe anything is possible.
I accept myself as I am, while still believing my body can change and adapt in incre...
2022-11-05 03:52:48 +0000 UTC
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Again, pretty breathless today. I still use my diaphragm pacer to breathe during the day. Beginning to practice breathing without it, but I have to remember every day to remind my caregivers to hel...
2022-11-05 03:31:16 +0000 UTC
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