I've been feeling a deep sort of calm happy feeling lately.
What if, everything works out? What does that even mean? Is the fact that I'm alive right now proof that everything is already work...
2023-01-26 04:51:36 +0000 UTC View Post
Just thought I would share this on here in case it will help aid in the search:)
Fun facts about what my caregiving looks like based on the Colorado Medicaid, which does not give me a 24 hour...
2023-01-26 03:03:59 +0000 UTC View Post
My first live, so obviously I didn't tell any of you about it because I just wanted to save it and put it on here and… basically I am feeling frazzled and frustrated because I have this issue, bu...
2023-01-24 22:23:41 +0000 UTC View Post
I'll be making a video updating about the situation with my pacer. It's extremely frustrating and I'm hoping that we will have it resolved by this week end, but there's no way of knowing right now ...
2023-01-24 21:28:34 +0000 UTC View Post
The diagram pacer is still not working correctly. As soon as we plugged in the cord this morning my body had an instant reaction and my blood pressure went dangerously high again.
I am ...
2023-01-22 23:56:24 +0000 UTC View Post
This explains more of what I think happened and shows me breathing off of everything.
2023-01-21 23:45:31 +0000 UTC View Post
Every morning, we plug me into the diaphragm PACER after being on a ventilator all night. Usually I have no problems with us, but today as soon as I was plugged in, my heart rate and blood pressure...
2023-01-21 23:43:23 +0000 UTC View PostI save all my songs about California
Maybe it's because I can't say
It was nice to know ya
And all the ways I've grown I wish I'd shown yeah
I miss you but ...
2023-01-19 21:40:26 +0000 UTC View Post
Pet peeve's: being manipulated and controlled
Disabled women still have these. Disables women's sex lives still exist in matter. Well mine doesn't exist yet, but it fucking matters. Unapologetically.
I might be a slut, I might be a family d...
I'm so overwhelmed.
Not sure why the voices in my head have to get so loud all the time.
Not sure why I am constantly reminded by my parents that all of this is all my fault.
Mayb...
2023-01-19 04:15:29 +0000 UTC View Post
Calling all the guides and angels and good thoughts. I seriously need to find more caregivers. Ones that are young, want to do fun things, and approve of the fact that I'm starting to date people. ...
2023-01-12 05:05:21 +0000 UTC View Post
And over there on my scandalous Tier I'm uploading sexy videos of me vaping and eating chocolate…
Tell your friends…
I've been in a bit of a slump mentally fighting Demons I can't g...
2023-01-10 04:47:10 +0000 UTC View Post
I love collecting quotes from the books and reading. Here's a short one from the hitchhikers guide to the galaxy. Props to this author you're making me laugh out loud.
2023-01-10 04:29:05 +0000 UTC View Post
… worried about finding new caregivers but also simultaneously ready to enter the next galaxy…
2023-01-09 04:45:08 +0000 UTC View Post
I have one week to read 35 chapters… Reading 1984 in five days kind of wiped me out mentally. Someone cuff me already and cuddle the heck out of me in cold Colorado for cuffing season. I promise ...
2023-01-09 02:40:04 +0000 UTC View PostSo, podcast names?
Paralyzed and polyamorous? Paralyzed and paranoid? Paralyzed and practically perfect in every way?
Decisions decisions.
Love,
e
2023-01-08 22:54:06 +0000 UTC View Post
I'm going through a creative dry spell, so I'm thinking in the interim Time before I receive my new outfits to try different Photo shoot ideas, I'll be doing some audio files describing all the eve...
2023-01-08 05:08:03 +0000 UTC View PostMy 92 year-old grandma, ruth, is in the hospital with pneumonia. She usually lives with us, thankfully my parents enjoy having her around and don't want to ever see her in a facility. We are all pr...
2023-01-06 04:35:01 +0000 UTC View Post
Somebody in the disabled Community referred to 2023 as the year of more accessibility. I hope I can be a part of making that true in someway.
Meanwhile…
I resolve to continue being me...
2023-01-01 22:16:41 +0000 UTC View Post
You should feel lucky you get to look at my feet.
2023-01-01 01:46:13 +0000 UTC View Post
It's a little absurd. As someone who is dependent on other Devices to breathe, I should automatically qualify for 24 hour caregiving paid by Medicaid. However from the very beginning I have only qu...
2022-12-31 05:16:11 +0000 UTC View Post
This place was far out and artistic, however I must say for a power wheelchair it was barely accessible. Maneuvering the narrow walkways kept me focused so much on driving my chair and avoiding bum...
2022-12-30 01:41:01 +0000 UTC View Post
Here's a sneak peek… for some reason I didn't realize that to go live I have to certify my account 24 hours in advance. So I did not get a lifestream last night:/ I did get a lot of video footage...
2022-12-29 21:17:07 +0000 UTC View Post
